This process of figuring out how to move forward with a valve replacement surgery for Dylan has been a very long process, with a few bursts of progress and LOTS of waiting in between.
We finally got a CT scan for Dylan on January 9th up at Seattle Children's. He got an IV for the contrast, and then spent some time in the CT machine, with directions to hold his breath throughout. It was a much faster process than the MRI.
Then we waited for a long time as Medtronics, the maker of the valve, did an analysis to see if Dylan's anatomy was the right shape. (For more info, read previous post.)
The office finally reached out to me to schedule a discussion with the doctor, but not until March 22nd. And of course they wouldn't tell me the results of the CT scan over the phone.
Well, last night (Sunday) I got a call from his cardiologist, because she knew that Dylan's been anxious to hear the results, and the wait has been much longer than normal. She told me over the phone that Dylan is a candidate for the catheter procedure with the harmony valve!! We are so thankful. We'll get more information on the 22nd, but for now, Dylan knows that he doesn't have to do an open heart procedure at this time. What a tender mercy.
Thank you to all who have been keeping Dylan in your thoughts and prayers. We appreciate each one of you!
.jpg)
No comments:
Post a Comment